Wonderful Day!!

Hello Everyone,

We went to the park today and had a great time!!!! The kids ran around and Ben did really good!! It was hot so they were very red and had to cool off when we left so we went to get Superman Ice Cream (Ben's new favorite).

Ben's counts were checked on Tuesday and are still low. They were about 925! We are praying they will get above 2000 by next wednesday so we can make a trip to Missouri to see Matt's Family!! We will pray that God will help us so we can go!!! Ben really wants to see his Grandparents and his Aunties, Uncles and Cousin too!!!


Ben has his next appointment on the 6th of June. He will be having a spinal tap this time. We will be sure to update you again.

We love you all and still Thank the Lord daily for the prayers you provide!! :)


Love Jamie

The Longest Day Ever!!

Oh man!! I am really looking forward to tomorrow and hoping that it is a much happier day. Matt took Ben to the Dr. today for his monthly visit and man is he grouchy today!! It is VERY apparent that this is Chemo caused grouchiness. This is not my normal little guy. Pray with us for a quick recovery.

Ben's ANC is down again...it is 900. This is quite a drop from his previous 1600 so we will continue have blood tests to make sure he does not drop below 750. If he does then he will have to discontinue his daily 6MP Chemo until it comes back up.


Otherwise he is doing well...Poppy is working on a lovely fenced in play yard that the kids are already very excited about...so am I....a very safe place to play. This play yard is huge and even has a newly planted orchard!! Poppy is going to build a big playground for the kids and I know they will love it!! Ben loves to be outside and we took him to the park yesterday but having his own playground will be much safer for him at times like this when his numbers are down.


We love you all

Jamie

National Marrow Donor Program - Be The Match Marrow Registry

National Marrow Donor Program - Be The Match Marrow Registry

2 Timothy 1:7

"GOD HAS NOT GIVEN US A SPIRIT OF FEAR, BUT OF POWER, AND OF LOVE, AND A SOUND MIND"

I realized I had this little ball of fear that was growing in the pit of my stomach that Olivia would possibly also get sick!! Her chances of leukemia are higher because of Ben's diagnosis. AAAHHH.....It is amazing how fast our fears can grow...I found myself obsessing over her appetite, every bruise, her coloring...everything.

All that to be said God is in control of her and me so I am praying that these fears will cease!! Pray with me everyone!!

Ben is doing well since his visit the week prior. For some reason though I cannot get his results of his last blood work-up...This is very irritating to me!! Last week our phones were down for several days because the phone line was accidentally damaged. And so far this week I cannot get an answer from the nurses....so far no one has returned my call!!!! UGGGHH... so goes life I suppose...at least no news is good news...we can pretty much assume that if they have not called then his numbers are in a good range and he is not in need of any transfusions.

I am so proud of my son and all he is accomplishing with this battle. I never would have thought that a three year old could touch so many lives and inspire so many people, but the feedback I get through my email and the blog is incredible to me. Ben touches me daily with his strength and I am falling in love with who my son is becoming.

I love you all and value your prayers beyond words!!

Jamie

Hey everyone,

Ben had an appointment at the Doctor yesterday and all went well!!! It seems that maintenance is getting off to a good start. We were finally able to get ALL of Ben's medicine in pill form and he is a happy little boy. I was shocked at the size of the antibiotic pill but he swallowed it with no problem.
Ben had Vinchristine in his port and his ANC was 1673 which has dropped since Easter but is still a reallly good number.

Love you all.

Daddy's Birthday!!

Ben was very happy to find out that it was Matt's birthday today!! He really thinks every day is his birthday no matter what we tell him so he was very excited that today is Matt's "too".
Ben asked me for a cracker today and I got down the box of cracker's and he said "No Mom, I need to play with Uncle Daniel's 'Poker Crackers'....I laughed hard and then I let him play with the poker chips.... I love my boy.

We go to the Doctor on Tuesday so Ben can have his next visit. This means another round of steroids and he will have Vinchristine in his port. Should be an easier day since we will not have a spinal tap!!

Happy Easter

I hope everyone had a lovely Easter weekend. We were able to take Ben on his first trip since getting here to Kentucky. We drove to Matt's Mother's house to visit for Easter. The kids had a blast and we drove home tired but fulfilled. We got to go to lunch with Matt's Grandmother and visit with her.
Savanna was happy when I came home and the kids were thrilled to see her. I started Babysitting Savanna ( my niece) during the week when my brother is working and the kids and I are already super attached. It broke Ben's heart that she couldn't come with us on our visit, but she was going to see her mom on Easter Sunday.
Ben did wonderful on the trip and despite a small cold that we initially thought was allergies he is doing well. So far Ben's first month of maintenance has gone well. His counts have stayed up to good levels. They will continue to monitor him over the next few months to be sure that they will stay up and we are praying they will. He is in a wonderful mood and very energetic most days!!
We miss everyone in Phoenix but we believe we have finally found a good church to go to!!

Ben's next appointment is next Tuesday the 13th!!! I will post again as soon as we know the outcome of the tests that day!!!


Love you all,

Jamie