Okay so we took Ben to the local Hospital today and his Dr. called with the results. His platets were low but not too low and his red blood count was fine. He is not in a low enough zone that he needs a transfusion but if he is still looking sickly tomorrow they will probably have us come in so they can make sure he does not have an infection or virus. Please keep praying with us and I will let you know more as soon as we know.
Jamie
Monday, June 14, 2010
Sunday, June 13, 2010
Uggghhhhhh :P
Why is it when you say something it comes back to bite you??
From my last posting:
"the Doctor let us know that Ben will no longer have to go to the local hospital in between visits to get his counts checked so he is officially going to be having once a month visits unless something significant occurs"
And of course we have to take him tomorrow to get his counts checked. He is really, really pale again and some bruising is showing up and he took a six hour nap yesterday and slept a super long time today too! His appetite is really bad...all of these are big indicators that his platelets and red counts are down. We will pray that he will not need to go in for transfusions but that's what ended up happening the last two times he was like this!!
Thanks for your prayers
From my last posting:
"the Doctor let us know that Ben will no longer have to go to the local hospital in between visits to get his counts checked so he is officially going to be having once a month visits unless something significant occurs"
And of course we have to take him tomorrow to get his counts checked. He is really, really pale again and some bruising is showing up and he took a six hour nap yesterday and slept a super long time today too! His appetite is really bad...all of these are big indicators that his platelets and red counts are down. We will pray that he will not need to go in for transfusions but that's what ended up happening the last two times he was like this!!
Thanks for your prayers
Tuesday, June 8, 2010
It is hard to believe that it has been more than a month since I blogged last...I apologize to all our supporters that have been wondering what has been going on.
Last month Ben's counts stayed low until last week when they came up to almost 1500!! We were blessed by his higher numbers and took the opportunity to meet Matt's parents in Springfield, Missouri where Matt's Brother and Sister-in-Law live. They have a daughter who is six months younger than Ben. Ben and Olivia had such a blast spending the weekend playing with their cousin Kennedy and seeing their Aunt's & Uncle's (Matt's Aunt and Uncle where with us as well) and their Grandma and Grandpa too!!
Ben had an appoinment in Louisville this morning. His counts were still holding steady at 1500 so the Doctor let us know that Ben will no longer have to go to the local hospital in between visits to get his counts checked so he is officially going to be having once a month visits unless something significant occurs.
Ben had a lumbar puncture today with chemo injected into his spinal fluid. He did get sick right after he woke from the procedure so he had to stay at the hospital longer than normal until he was able to keep down fluids and food. By the time he got home he was feeling much better and even got to go to church to VBS. It was the best medicine for him to go play with his friends and sing and dance and do the crafts and to learn more about God. He is really excited to go back tomorrow!!
We did have one scare during this last month. We had to take Ben to the hospital because I thought that I had dislodged his port by picking him up and accidentally pushing on it at a weird angle. It turned out that the ripping/popping sensation I felt when I picked him up was scar tissue and did no damage to his port. So aside from not getting home from the emergency room until 1:30am we were blessed that there was not any serious damage done.
We are continueing to be blessed by all the prayers and support from everyone and please keep our prayer cover strong. We love you all and will not wait so long until the next posting!!
Jamie
Last month Ben's counts stayed low until last week when they came up to almost 1500!! We were blessed by his higher numbers and took the opportunity to meet Matt's parents in Springfield, Missouri where Matt's Brother and Sister-in-Law live. They have a daughter who is six months younger than Ben. Ben and Olivia had such a blast spending the weekend playing with their cousin Kennedy and seeing their Aunt's & Uncle's (Matt's Aunt and Uncle where with us as well) and their Grandma and Grandpa too!!
Ben had an appoinment in Louisville this morning. His counts were still holding steady at 1500 so the Doctor let us know that Ben will no longer have to go to the local hospital in between visits to get his counts checked so he is officially going to be having once a month visits unless something significant occurs.
Ben had a lumbar puncture today with chemo injected into his spinal fluid. He did get sick right after he woke from the procedure so he had to stay at the hospital longer than normal until he was able to keep down fluids and food. By the time he got home he was feeling much better and even got to go to church to VBS. It was the best medicine for him to go play with his friends and sing and dance and do the crafts and to learn more about God. He is really excited to go back tomorrow!!
We did have one scare during this last month. We had to take Ben to the hospital because I thought that I had dislodged his port by picking him up and accidentally pushing on it at a weird angle. It turned out that the ripping/popping sensation I felt when I picked him up was scar tissue and did no damage to his port. So aside from not getting home from the emergency room until 1:30am we were blessed that there was not any serious damage done.
We are continueing to be blessed by all the prayers and support from everyone and please keep our prayer cover strong. We love you all and will not wait so long until the next posting!!
Jamie
Thursday, May 27, 2010
Wonderful Day!!
Hello Everyone,
We went to the park today and had a great time!!!! The kids ran around and Ben did really good!! It was hot so they were very red and had to cool off when we left so we went to get Superman Ice Cream (Ben's new favorite).
Ben's counts were checked on Tuesday and are still low. They were about 925! We are praying they will get above 2000 by next wednesday so we can make a trip to Missouri to see Matt's Family!! We will pray that God will help us so we can go!!! Ben really wants to see his Grandparents and his Aunties, Uncles and Cousin too!!!
Ben has his next appointment on the 6th of June. He will be having a spinal tap this time. We will be sure to update you again.
We love you all and still Thank the Lord daily for the prayers you provide!! :)
Love Jamie
We went to the park today and had a great time!!!! The kids ran around and Ben did really good!! It was hot so they were very red and had to cool off when we left so we went to get Superman Ice Cream (Ben's new favorite).
Ben's counts were checked on Tuesday and are still low. They were about 925! We are praying they will get above 2000 by next wednesday so we can make a trip to Missouri to see Matt's Family!! We will pray that God will help us so we can go!!! Ben really wants to see his Grandparents and his Aunties, Uncles and Cousin too!!!
Ben has his next appointment on the 6th of June. He will be having a spinal tap this time. We will be sure to update you again.
We love you all and still Thank the Lord daily for the prayers you provide!! :)
Love Jamie
Tuesday, May 11, 2010
The Longest Day Ever!!
Oh man!! I am really looking forward to tomorrow and hoping that it is a much happier day. Matt took Ben to the Dr. today for his monthly visit and man is he grouchy today!! It is VERY apparent that this is Chemo caused grouchiness. This is not my normal little guy. Pray with us for a quick recovery.
Ben's ANC is down again...it is 900. This is quite a drop from his previous 1600 so we will continue have blood tests to make sure he does not drop below 750. If he does then he will have to discontinue his daily 6MP Chemo until it comes back up.
Otherwise he is doing well...Poppy is working on a lovely fenced in play yard that the kids are already very excited about...so am I....a very safe place to play. This play yard is huge and even has a newly planted orchard!! Poppy is going to build a big playground for the kids and I know they will love it!! Ben loves to be outside and we took him to the park yesterday but having his own playground will be much safer for him at times like this when his numbers are down.
We love you all
Jamie
Ben's ANC is down again...it is 900. This is quite a drop from his previous 1600 so we will continue have blood tests to make sure he does not drop below 750. If he does then he will have to discontinue his daily 6MP Chemo until it comes back up.
Otherwise he is doing well...Poppy is working on a lovely fenced in play yard that the kids are already very excited about...so am I....a very safe place to play. This play yard is huge and even has a newly planted orchard!! Poppy is going to build a big playground for the kids and I know they will love it!! Ben loves to be outside and we took him to the park yesterday but having his own playground will be much safer for him at times like this when his numbers are down.
We love you all
Jamie
Thursday, May 6, 2010
Wednesday, May 5, 2010
2 Timothy 1:7
"GOD HAS NOT GIVEN US A SPIRIT OF FEAR, BUT OF POWER, AND OF LOVE, AND A SOUND MIND"
I realized I had this little ball of fear that was growing in the pit of my stomach that Olivia would possibly also get sick!! Her chances of leukemia are higher because of Ben's diagnosis. AAAHHH.....It is amazing how fast our fears can grow...I found myself obsessing over her appetite, every bruise, her coloring...everything.
All that to be said God is in control of her and me so I am praying that these fears will cease!! Pray with me everyone!!
Ben is doing well since his visit the week prior. For some reason though I cannot get his results of his last blood work-up...This is very irritating to me!! Last week our phones were down for several days because the phone line was accidentally damaged. And so far this week I cannot get an answer from the nurses....so far no one has returned my call!!!! UGGGHH... so goes life I suppose...at least no news is good news...we can pretty much assume that if they have not called then his numbers are in a good range and he is not in need of any transfusions.
I am so proud of my son and all he is accomplishing with this battle. I never would have thought that a three year old could touch so many lives and inspire so many people, but the feedback I get through my email and the blog is incredible to me. Ben touches me daily with his strength and I am falling in love with who my son is becoming.
I love you all and value your prayers beyond words!!
Jamie
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