Thursday, February 24, 2011
Wednesday, February 23, 2011
February 23rd
Hello everyone,
I wanted to thank you all for your support since Ben's diagnosis! You have all been so wonderful and I really appreciate it. I wanted to invite you to visit another blog of mine. I am doing a fundraiser for an organization that is very important to me. Visit, take a look and let me know what you think!
www.withaneedleandthread.blogspot.com
Jamie
I wanted to thank you all for your support since Ben's diagnosis! You have all been so wonderful and I really appreciate it. I wanted to invite you to visit another blog of mine. I am doing a fundraiser for an organization that is very important to me. Visit, take a look and let me know what you think!
www.withaneedleandthread.blogspot.com
Jamie
Monday, February 21, 2011
Almost Spring
Winter has been soooo cold compared to Arizona but we are starting to see some small signs that our spring is approaching. Being here for a full year of seasons I can finally say that Spring is my favorite.
Ben is doing wonderful and he is really enjoying a lot lately. He seems to be so Joyful over so many things. His last appointment went well and his next appointment will be March 3rd. They have also given us an ending date for his treatment which will be October 26th of 2012. It seems so near yet far away at the same time.
We are moving to Louisville which is about 1 and 1/2 - 2 hours away. It is still close enough to my parents that they can be very helpful to us if something were to happen to Ben. I am sad to be leaving but also excited about feeling like we get to start again now.
God has blessed me so much today. We have friends in Louisville that I know from Arizona. I contacted them to let them know that we were moving nearby only to find out that they were moving back to Phoenix, AZ in early march. However my friend has just put me in contact with another family who have a boy with leukemia. I am praying that the Lord will build this friendship. I do not know the circumstances yet of what type of Leukemia the other little boy has so until then please pray for this family as I am sure they can never have too much prayer!! Be prayer warriors for them as well!!!
Love
Jamie
Ben is doing wonderful and he is really enjoying a lot lately. He seems to be so Joyful over so many things. His last appointment went well and his next appointment will be March 3rd. They have also given us an ending date for his treatment which will be October 26th of 2012. It seems so near yet far away at the same time.
We are moving to Louisville which is about 1 and 1/2 - 2 hours away. It is still close enough to my parents that they can be very helpful to us if something were to happen to Ben. I am sad to be leaving but also excited about feeling like we get to start again now.
God has blessed me so much today. We have friends in Louisville that I know from Arizona. I contacted them to let them know that we were moving nearby only to find out that they were moving back to Phoenix, AZ in early march. However my friend has just put me in contact with another family who have a boy with leukemia. I am praying that the Lord will build this friendship. I do not know the circumstances yet of what type of Leukemia the other little boy has so until then please pray for this family as I am sure they can never have too much prayer!! Be prayer warriors for them as well!!!
Love
Jamie
Friday, January 7, 2011
2011
We made it into the new year with little trouble. We had a wonderful time in Phoenix visiting all our Family and Friends. We got sick while we were their but the Lord protected Ben and he barely got sick even when everyone else was running fevers! We were a little sad that because of getting sick we didn't get to see everyone we wanted to see but we love you all and Thank you for making our visit so much fun!
The drive back to Kentucky went well! My cousin Lacey drove with me and we had so much fun....We laughed so hard almost the whole way and just had a blessed time together! We had to drive home on the I-10 instead of the I-40 because of bad weather, but the drive we had was perfect and we had sunshine days all the way home!
Ben had an appointment two days ago on Wednesday! Because of the cold/flu we all just had his numbers dropped from 3300 to 300! He is fine and their is no immediate danger. He recieved his Vinchristine in his port on wednesday but his two chemo drugs he takes in pill form at home they have stopped until his numbers come back up. He will have CBCs done next Tuesday to check if his meds can be started again!
I hope you all had a Merry Christmas and a great New Year!!
Jamie
The drive back to Kentucky went well! My cousin Lacey drove with me and we had so much fun....We laughed so hard almost the whole way and just had a blessed time together! We had to drive home on the I-10 instead of the I-40 because of bad weather, but the drive we had was perfect and we had sunshine days all the way home!
Ben had an appointment two days ago on Wednesday! Because of the cold/flu we all just had his numbers dropped from 3300 to 300! He is fine and their is no immediate danger. He recieved his Vinchristine in his port on wednesday but his two chemo drugs he takes in pill form at home they have stopped until his numbers come back up. He will have CBCs done next Tuesday to check if his meds can be started again!
I hope you all had a Merry Christmas and a great New Year!!
Jamie
Friday, December 17, 2010
Christmas Time!!
I wanted to write and let everyone know how Ben is doing!!! WONDERFUL! Our Phoenix visit so far has been awesome and God is blessing us with daily protection of Ben's health. He has not caught the horrible congesty (not a word) cough and cold that is going around! I got it and recovered quickly and so did Ollie Rose. We are having a blast visiting all our amazing loved ones that we have been missing. The kids did superb on the 30 hour car ride!! They are amazing kids and I love them. Thank you all for your prayers and "We wish you a Merry Christmas"
Jamie
P.s. I will not be putting up a new Shirt of the Month for December!
Jamie
P.s. I will not be putting up a new Shirt of the Month for December!
Saturday, November 13, 2010
Ben woke up today sick from his Chemo. He is such a big boy. He tries so hard to get to the bathroom on time, but right when he wakes up is the hardest time for him to get there quickly. His nausea came and went today. It was bad in the morning, then it let up for a while then came back around three o'clock. I think he will be feeling better by tomorrow but pray that he will have some relief.
Friday, November 5, 2010
November
Wow! We are really looking forward to Thanksgiving and Christmas! It is getting pretty cold here. It was 23 degrees last night.
Matt and I are taking Ben and Olivia to Mississippi for Thanksgiving to celebrate Christmas. We are going to meet his Mom and Dad and Brother's family at the family cabin. The kids are really exicted to go and have that time with their cousin.
I am still hoping to come to Phoenix with the kids in December. Ben has been really wanting to go and see everyone that he misses so much. I am hoping to find someone who wants to fly here and drive with me :) so I don't have to go alone, but I will come out either way as long as I can manage to make it work with our schedules of Dr. appointments and other things.
Ben's last appointment went well. His ANC dropped down again, but not to an alarming rate. He had Vinchristine in his port and he is due for a spinal tap again on November 30th.
I would love to ask for prayer for me. I am in a pretty agressive disagreement with Ben's Oncologist right now. I have been asking for paperwork to be signed to allow Ben to be able to recieve "Home Hospital Education". This is a program that would send a teacher to our home 2-3 hours to help with Ben's school. However, because the Doctor does not "believe" in homeschooling he is unwilling to sign it. I believe his reasons have nothing to do with anything medically reasonable, but instead has everything to do with this Doctor being personally against homeschooling. He even went so far as to tell Matt and I to our faces that "kids do not spread germs and diseases, they only get sick from bacteria from our own bodies." I have spoken to the hospital administration and I am pursuing this because I feel that they are violating my right to choose how to educate my own son. Anyway, Please pray that God will give me wisdom in this and that he will continue to guide me to resources (He has already provided so much help) that will help me state my case to the administration.
All my love Jamie
Matt and I are taking Ben and Olivia to Mississippi for Thanksgiving to celebrate Christmas. We are going to meet his Mom and Dad and Brother's family at the family cabin. The kids are really exicted to go and have that time with their cousin.
I am still hoping to come to Phoenix with the kids in December. Ben has been really wanting to go and see everyone that he misses so much. I am hoping to find someone who wants to fly here and drive with me :) so I don't have to go alone, but I will come out either way as long as I can manage to make it work with our schedules of Dr. appointments and other things.
Ben's last appointment went well. His ANC dropped down again, but not to an alarming rate. He had Vinchristine in his port and he is due for a spinal tap again on November 30th.
I would love to ask for prayer for me. I am in a pretty agressive disagreement with Ben's Oncologist right now. I have been asking for paperwork to be signed to allow Ben to be able to recieve "Home Hospital Education". This is a program that would send a teacher to our home 2-3 hours to help with Ben's school. However, because the Doctor does not "believe" in homeschooling he is unwilling to sign it. I believe his reasons have nothing to do with anything medically reasonable, but instead has everything to do with this Doctor being personally against homeschooling. He even went so far as to tell Matt and I to our faces that "kids do not spread germs and diseases, they only get sick from bacteria from our own bodies." I have spoken to the hospital administration and I am pursuing this because I feel that they are violating my right to choose how to educate my own son. Anyway, Please pray that God will give me wisdom in this and that he will continue to guide me to resources (He has already provided so much help) that will help me state my case to the administration.
All my love Jamie
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