Hey everyone,
Ben had an appointment at the Doctor yesterday and all went well!!! It seems that maintenance is getting off to a good start. We were finally able to get ALL of Ben's medicine in pill form and he is a happy little boy. I was shocked at the size of the antibiotic pill but he swallowed it with no problem.
Ben had Vinchristine in his port and his ANC was 1673 which has dropped since Easter but is still a reallly good number.
Love you all.
Thursday, April 15, 2010
Sunday, April 11, 2010
Daddy's Birthday!!
Ben was very happy to find out that it was Matt's birthday today!! He really thinks every day is his birthday no matter what we tell him so he was very excited that today is Matt's "too".
Ben asked me for a cracker today and I got down the box of cracker's and he said "No Mom, I need to play with Uncle Daniel's 'Poker Crackers'....I laughed hard and then I let him play with the poker chips.... I love my boy.
We go to the Doctor on Tuesday so Ben can have his next visit. This means another round of steroids and he will have Vinchristine in his port. Should be an easier day since we will not have a spinal tap!!
Ben asked me for a cracker today and I got down the box of cracker's and he said "No Mom, I need to play with Uncle Daniel's 'Poker Crackers'....I laughed hard and then I let him play with the poker chips.... I love my boy.
We go to the Doctor on Tuesday so Ben can have his next visit. This means another round of steroids and he will have Vinchristine in his port. Should be an easier day since we will not have a spinal tap!!
Tuesday, April 6, 2010
Happy Easter
I hope everyone had a lovely Easter weekend. We were able to take Ben on his first trip since getting here to Kentucky. We drove to Matt's Mother's house to visit for Easter. The kids had a blast and we drove home tired but fulfilled. We got to go to lunch with Matt's Grandmother and visit with her.
Savanna was happy when I came home and the kids were thrilled to see her. I started Babysitting Savanna ( my niece) during the week when my brother is working and the kids and I are already super attached. It broke Ben's heart that she couldn't come with us on our visit, but she was going to see her mom on Easter Sunday.
Ben did wonderful on the trip and despite a small cold that we initially thought was allergies he is doing well. So far Ben's first month of maintenance has gone well. His counts have stayed up to good levels. They will continue to monitor him over the next few months to be sure that they will stay up and we are praying they will. He is in a wonderful mood and very energetic most days!!
We miss everyone in Phoenix but we believe we have finally found a good church to go to!!
Ben's next appointment is next Tuesday the 13th!!! I will post again as soon as we know the outcome of the tests that day!!!
Love you all,
Jamie
Savanna was happy when I came home and the kids were thrilled to see her. I started Babysitting Savanna ( my niece) during the week when my brother is working and the kids and I are already super attached. It broke Ben's heart that she couldn't come with us on our visit, but she was going to see her mom on Easter Sunday.
Ben did wonderful on the trip and despite a small cold that we initially thought was allergies he is doing well. So far Ben's first month of maintenance has gone well. His counts have stayed up to good levels. They will continue to monitor him over the next few months to be sure that they will stay up and we are praying they will. He is in a wonderful mood and very energetic most days!!
We miss everyone in Phoenix but we believe we have finally found a good church to go to!!
Ben's next appointment is next Tuesday the 13th!!! I will post again as soon as we know the outcome of the tests that day!!!
Love you all,
Jamie
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