Saturday, November 13, 2010
Ben woke up today sick from his Chemo. He is such a big boy. He tries so hard to get to the bathroom on time, but right when he wakes up is the hardest time for him to get there quickly. His nausea came and went today. It was bad in the morning, then it let up for a while then came back around three o'clock. I think he will be feeling better by tomorrow but pray that he will have some relief.
Friday, November 5, 2010
November
Wow! We are really looking forward to Thanksgiving and Christmas! It is getting pretty cold here. It was 23 degrees last night.
Matt and I are taking Ben and Olivia to Mississippi for Thanksgiving to celebrate Christmas. We are going to meet his Mom and Dad and Brother's family at the family cabin. The kids are really exicted to go and have that time with their cousin.
I am still hoping to come to Phoenix with the kids in December. Ben has been really wanting to go and see everyone that he misses so much. I am hoping to find someone who wants to fly here and drive with me :) so I don't have to go alone, but I will come out either way as long as I can manage to make it work with our schedules of Dr. appointments and other things.
Ben's last appointment went well. His ANC dropped down again, but not to an alarming rate. He had Vinchristine in his port and he is due for a spinal tap again on November 30th.
I would love to ask for prayer for me. I am in a pretty agressive disagreement with Ben's Oncologist right now. I have been asking for paperwork to be signed to allow Ben to be able to recieve "Home Hospital Education". This is a program that would send a teacher to our home 2-3 hours to help with Ben's school. However, because the Doctor does not "believe" in homeschooling he is unwilling to sign it. I believe his reasons have nothing to do with anything medically reasonable, but instead has everything to do with this Doctor being personally against homeschooling. He even went so far as to tell Matt and I to our faces that "kids do not spread germs and diseases, they only get sick from bacteria from our own bodies." I have spoken to the hospital administration and I am pursuing this because I feel that they are violating my right to choose how to educate my own son. Anyway, Please pray that God will give me wisdom in this and that he will continue to guide me to resources (He has already provided so much help) that will help me state my case to the administration.
All my love Jamie
Matt and I are taking Ben and Olivia to Mississippi for Thanksgiving to celebrate Christmas. We are going to meet his Mom and Dad and Brother's family at the family cabin. The kids are really exicted to go and have that time with their cousin.
I am still hoping to come to Phoenix with the kids in December. Ben has been really wanting to go and see everyone that he misses so much. I am hoping to find someone who wants to fly here and drive with me :) so I don't have to go alone, but I will come out either way as long as I can manage to make it work with our schedules of Dr. appointments and other things.
Ben's last appointment went well. His ANC dropped down again, but not to an alarming rate. He had Vinchristine in his port and he is due for a spinal tap again on November 30th.
I would love to ask for prayer for me. I am in a pretty agressive disagreement with Ben's Oncologist right now. I have been asking for paperwork to be signed to allow Ben to be able to recieve "Home Hospital Education". This is a program that would send a teacher to our home 2-3 hours to help with Ben's school. However, because the Doctor does not "believe" in homeschooling he is unwilling to sign it. I believe his reasons have nothing to do with anything medically reasonable, but instead has everything to do with this Doctor being personally against homeschooling. He even went so far as to tell Matt and I to our faces that "kids do not spread germs and diseases, they only get sick from bacteria from our own bodies." I have spoken to the hospital administration and I am pursuing this because I feel that they are violating my right to choose how to educate my own son. Anyway, Please pray that God will give me wisdom in this and that he will continue to guide me to resources (He has already provided so much help) that will help me state my case to the administration.
All my love Jamie
Subscribe to:
Posts (Atom)
