This week

Ben had his appointment two days ago. They gave him the Vinchristine in his port and he started this month's steroids yesterday. Matt's parents came to visit Thursday afternoon on their way to Missouri and the kids absolutely loved it. Ben had so much fun with his "B" and "Re". He was very sad when they left and he cried hard. It made me sad that he was so heart broken but also filled me with Joy that he has such a good relationship with both sets of Grandparents. He loves them so much and calls them all his friends. I love it so much!!
Pray for me as I am now struggling with Ben over his appetite and diet. It is getting increasingly difficult to get him to eat right. It started with pickiness, like only wanting to eat certain foods some good foods some not. He craved the bad foods when he was on steroids. Now even with the steroids it is hard to get him to eat at all. Not only is it completely frustrating I find my heart breaking every day with our battle to get him to eat. I feel so mean at times being so firm and hard during meal times especially when we have to punish him to get him to eat. I broke down last night and if it weren't for my mom being able to get him to eat I think it would have been so hard. I feel cruel at times forcing him to eat, but our other option is admitting him to the hospital. We have begun to supplement him with Pediasur ( which he doesn't like) because he is not eating good. If he loses too much weight than he will have to go to the hospital and they will put a tube through his nose down to his stomach to give him pediasure until his weight comes up and he eats well on his own. I have been told that they can be in there more than a month over this. I am also being told that this is only the beginning and can get much more difficult.
Anyway Thank you so much for your prayers and please keep it up. I am soooo sad lately but I know that we will get through this with the Lord and all our supporters.

Love Jamie

Our Mix-up

Last weekend I had the opportunity to go with my Mom and my Aunt to a horse weekend just for girls. Unfortunately Matt made a mistake and gave Ben his Thurday night Meds on Friday too. So he had two doses of his methotrexate and we called the Dr. Luckily the worst case scenario is it MIGHT lower his ANC for a week or so. Unfortunately it did make him very naseaus and he threw up a lot today. We will take him tomorrow to get his counts checked.

Otherwise we are doing well and Ben's next appointment is on the 6th of July so pray for us that it will go well and we will update you guys by the 6th if not sooner.

Jamie