We went for Ben's visit in Louisville today and it went really well. Ben received Vinchristine in his port IV. I really love the nurse he had today. He had her last time too, but she is lightning fast at accessing his port. Normally he screams and we have to hold him down, but she is so fast and gentle that he barely made any noise the last two times!! Thank you Jesus for Tammy!!
We saw Dr. Cheervo today for the first time and I really like her. She seems really interested in the natural supplements Ben is taking. Most of the Dr's have just kinda turned up their noses at us, which doesn't really matter because I know they are working but she took the card of the Naturopathic Dr. that we work with at Cancer Treatment Centers of America so she could follow up with him. I called the Naturopathic's office a few hours after I got home and she had already put in a call so I am really happy to see that she is genuinely interested in it.
Dr. Cheervo said that Ben does have a really bad cough and she thinks it is due to drainage from his congestion so it should go away soon.
Ben has not had a fever since the ER. PRAISE THE LORD!!! I am sure it is bound to happen again but I hope and pray that it doesn't.
I love you all. Thank you for your prayers.
Love Jamie
Tuesday, September 28, 2010
Sunday, September 26, 2010
Thank you everyone so much for your prayers this last month. I have really felt the Lord by my side lately.
Ben had quite a time last week. He is still sick and we seem to be dealing with a really tough virus. Ben spiked a temperature on Thursday night of last week. When I took his temperature at home it was 103 degrees. We called the on-call physician and he had us go to the local ER so Ben could be checked out. By the time we got there his temp was 105.2 and climbing. They could not give him Tylenol until his blood was checked. They had to be sure he did not have some specific problems that the Tylenol would interfere with. Finally they were able to bring his temp down to a normal range. He still had a horrible cough, so they x-rayed him again. The x-ray came back clear. They aloud us to go home that night, but we were instructed to watch him closely for fever again.
So far this weekend he has not had any trouble with fever but his cough has gotten really bad this morning. Every time he coughs he says it hurts really bad. Poor guy.
Ben has an appointment with the Oncologist on Tuesday morning so I will update you on his situation when I get home.
Love you all
Jamie
Ben had quite a time last week. He is still sick and we seem to be dealing with a really tough virus. Ben spiked a temperature on Thursday night of last week. When I took his temperature at home it was 103 degrees. We called the on-call physician and he had us go to the local ER so Ben could be checked out. By the time we got there his temp was 105.2 and climbing. They could not give him Tylenol until his blood was checked. They had to be sure he did not have some specific problems that the Tylenol would interfere with. Finally they were able to bring his temp down to a normal range. He still had a horrible cough, so they x-rayed him again. The x-ray came back clear. They aloud us to go home that night, but we were instructed to watch him closely for fever again.
So far this weekend he has not had any trouble with fever but his cough has gotten really bad this morning. Every time he coughs he says it hurts really bad. Poor guy.
Ben has an appointment with the Oncologist on Tuesday morning so I will update you on his situation when I get home.
Love you all
Jamie
Saturday, September 11, 2010
This has been quite a month. I am sorry that I have not been able to keep up the blog as much. I still have limited access to the internet right now. I appreciate everyone's patience in this!!
Ben's appointment was on the 31st of August and it went well. He was scheduled for a spinal tap. They tested his spinal fluid for leukemia cells and injected chemo into his spinal column. This went well and so far has reacted well this time to this treatment. He also recieved another chemo drug in his IV port.
I had to take both Benjamin and Olivia into the primary care physician because two weeks ago they started having cold syptoms. Ben, Olivia, and I all had ear infections in both ears and had to be on anti-biotics. They are still having syptoms of this nasty cold and they also caught a viral infection that had them both sick with vomiting and diarrhea. We had to take Benjamin to the hospital on Tuesday night. We got there and he was dehydrated so they gave him IV fluids they also checked his blood for infections and found the gastroenteritis virus present. He had a bad cough from the cold so they x-rayed his lungs and they came back clear. Finally at about three A.M. on wednesday morning he kept down food and water so they released us to go home. He is doing better today and although Olivia is going back to the Doctor tomorrow because it seems that her ear infection is worse, at least Ben has not had the same problems continue.
On top of all of this I am dealing with Olivia having lice. We are not sure how she got it because we don't go out much around other people, maybe church or somewhere else, but we are dealing with and seem to have it all under control. The local news station just recently reported that not only is lice going around the schools and daycares really bad it seems to be that they are not getting this outbreak under control with over the counter options. Even though my kids are not in school or daycare it seems that this outbreak is pretty extensive for this little county. I feel like we have been through the ringer this month but here is the amazing news. Even though this has been a tough couple of weeks this is the FIRST time in over one year that Benjamin has gotten sick at all and I can only PRAISE GOD for this miracle. I find it amazing that a normal four year old not being sick in a whole year is really rare, not to mention a immune suppressed one!! GOD IS SO GOOD!!
THank you all so much for your support. Please keep us in your prayers!!
Love Jamie
Ben's appointment was on the 31st of August and it went well. He was scheduled for a spinal tap. They tested his spinal fluid for leukemia cells and injected chemo into his spinal column. This went well and so far has reacted well this time to this treatment. He also recieved another chemo drug in his IV port.
I had to take both Benjamin and Olivia into the primary care physician because two weeks ago they started having cold syptoms. Ben, Olivia, and I all had ear infections in both ears and had to be on anti-biotics. They are still having syptoms of this nasty cold and they also caught a viral infection that had them both sick with vomiting and diarrhea. We had to take Benjamin to the hospital on Tuesday night. We got there and he was dehydrated so they gave him IV fluids they also checked his blood for infections and found the gastroenteritis virus present. He had a bad cough from the cold so they x-rayed his lungs and they came back clear. Finally at about three A.M. on wednesday morning he kept down food and water so they released us to go home. He is doing better today and although Olivia is going back to the Doctor tomorrow because it seems that her ear infection is worse, at least Ben has not had the same problems continue.
On top of all of this I am dealing with Olivia having lice. We are not sure how she got it because we don't go out much around other people, maybe church or somewhere else, but we are dealing with and seem to have it all under control. The local news station just recently reported that not only is lice going around the schools and daycares really bad it seems to be that they are not getting this outbreak under control with over the counter options. Even though my kids are not in school or daycare it seems that this outbreak is pretty extensive for this little county. I feel like we have been through the ringer this month but here is the amazing news. Even though this has been a tough couple of weeks this is the FIRST time in over one year that Benjamin has gotten sick at all and I can only PRAISE GOD for this miracle. I find it amazing that a normal four year old not being sick in a whole year is really rare, not to mention a immune suppressed one!! GOD IS SO GOOD!!
THank you all so much for your support. Please keep us in your prayers!!
Love Jamie
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