A new week!!!

We were finally able to get Ben his treatment this week after a 3 week delay in treatment. Ben's counts were just high enough for us to get him treated on Tuesday. They introduced three new drugs to his system. The first Sytoxin required eight hours of fluids to protect his bladder from bleeding. He tolerated this very well and did not have any bleeding which is great. He did have a spinal tap to check once again for bad cells in his spinal fluid and also the Sytoxin was administered into his spine. The second drug is called 6TG and it is a pill we will be giving him for a total of fourteen days. He is taking these just fine and has not had any bad reactions. The third is called ERRI-C and it is administered through his port IV for four days in a row. They administered the first dose to Ben at the Clinic at Kosair and we found out at clinic that they were not able to find any home nurses willing to adminster Chemo to a pediatric patient so Matt has given ben the ERRI-C the last three days. They will not always allow Matt to do this depending on the type of drug he is recieving but this is a safe chemical for him to give Ben. Ben has actually really liked that Matt is giving him his medicine this week. I am thankful that we mentioned that Matt is an EMT so that now we do not have to drive back and forth as much, because it is very exhausting for Ben. We are leaving for the local hospital shortly to do lab draws to check Ben's counts so we can determine wether or not he will continue this round of treatment next week.

Aside from the usual mood swings and food changes in taste for Ben we are managing well. Ben is still such a little brave guy every time we go in to the Doctor's. We love you all very much and still praise God every day for the amazing prayer support.

With much Love,

Jamie