Survivor

Survivor

Tuesday, August 28, 2012

Lord Grant us Strength and Peace

I am going to explain this a little out of order so that I can have prayer coverage were we need it the most right now. You will read farther down that Ben is going to have a CT scan soon. Because they cannot do the contrast in his port they have to do an IV in his hand. They have already tried once and it did not work. Ben is absolutely terrified of this and although they got in the vein his anxienty is causing it to tighten up and blood will not flow. They have requested the IV team to come down because the veins in his tiny little hands are very difficult to access. I requested that they give him something to calm him and they have given him adovan. It has not made him sleepy but he is sitting on his bed and painting and singing. He hasn't been singing since we got here and he rarely sings unless he is at home or at Poppy's house, the places he feels the most safe. But I am having a hard time with this because it just terrifies him and he screams for me "Mommy please make them stop" and they had to hold him down and normally he is so tough and my heart is just aching and I want to make them stop hurting him so bad, but I know they have to do this and it is so hard. As I am writing the Adovan seems to be calming him down and even making him a littls sleepy so I am just Praying and Praying that it will be enough to make it easier on him. Please Pray for my baby! Lord Give us both strength. I just want to Shout our to the Lord and beg for him to stop all of this!! I am not so much different than my son. I posted last night about the virus tests that came back positive for para-influenza. This is a common virus that is cold/flu like syptoms that include fever, coughing, and congestion. This Para-influenza can sometimes get in the spinal fluid and cause meningitis. This morning during rounds the Doctor's let us know that they wanted to do a CT scan to double check that they are not missing anything. Rarer things like an absess in his brain. They want to be sure that there are no other problems in Ben's brain that could be causing the horrible headaches. They also want to scan his chest and pelvis to ensure that there aren't any other problems. Everytime they give him his Vancomycin every six hours they check his kidney functions because this is a pretty hefty anti-biotic and could do damage if not watched closely. His Creatin levels are too high right now so they did not administer his last dose of Vancomycin and took blood to check out his kidneys again at 10:00am this morning. Once they have those results back they will determine how they will proceed with the Vanc. They may lower the dosage and/or change it to every eight hours instead. The other situation of concern this morning is that they really feel that it is important to do he CT scan however they have to use contrast and that also goes through his kidney's. So they will be giving him a lot more fluids right after the scan to help keep his kidney's healthy from the contrast and the vancomycin. As soon as they access him and we come back from the CT scan I will let you all know how he is doing. Thank you. Jamie

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