Christmas In Kentucky!!

Merry Christmas!!!!


Today will be a tiring day for my little guy. He had his last appointment on this last Friday and it was the beginning of a new phase. They have put him on steroids again. It is a higher dose each day but only seven days this time followed by seven days off then another seven days on. I am not sure how much weight he will gain this time but at least he will be able to enjoy all the Holiday food. He also had a spinal tap on Friday and it did come back negative for cells in his spinal fluid. He had Vinchristine in his port IV and a new Chemo they nickname the "red one" because it is red and can make Ben's urine turn red. When we warned him of this he looked at us like we were crazy and informed us his is yellow. But since then he has been joking with us that his pee is blue :) He had another appointment today to recieve one more Chemo Drug called PEG. They did this once before when we were in the hospital and this is really not a fun process they have to inject this into his thighs with big long needles. It hurt him really bad and last time he complained of pain in his legs for a few days. Ben(big ben), Val, and Baby Jack got here yesterday and Sean, Jo, Emma, Gabe, Chloe, and Baby Logan will be here late tonight, we also get to have Suvanna with us on Christmas Eve.
Matt's parents will be here today also and they will be staying nearby for a couple of days. We are thrilled to have all our people around us for Christmas!!!! Ben and Olivia are thrilled to have both their grandparents around to spoil them rotten :)
Ben will be having another appointment on Monday to continue this next phase. I think that this is the last phase before maintenance but we will have to see. Once he reaches maintenance he will have steroids on the first five days of each month for the three year maintenance.
Merry Christmas to all of you!!!! We miss you so much especially during this time of year. Thank you for all your Christmas cards!!! Thank you for the blessing of your prayers. We would not be doing well without this support.

Love
Jamie