Survivor

Survivor

Saturday, December 5, 2009

Ben's First Appointment in Kentucky

The kids and I have made it to Kentucky and we are doing well!! We were blessed to be able to go to Aunt Pam's for Thanksgiving and see everyone before we left. I was sad to say goodbye to everyone but I can now be excited about coming back for visits.
Matt is still in phoenix but he will starting his drive with Daniel on Monday. They are going to make the drive faster than Dad and I did with the kids so hopefully we will see them tuesday night or wednesday morning!! The kids miss Matt like crazy and so do I but we are keeping them distracted with many other things to do around here.
Ben had his first doctor visit at Kosair yesterday. Kosair is two hours away from Dad's house and is also in a different time zone so we had to get up at 4:30 our time to be there at nine o'clock at Kosair. Some of Ben's treatments will be very early in the morning because they will take so long to finish so sometimes we will go there the night before treatment and stay at the Ronald McDonald house. This is an amazing blessing and only seven dollars a night to stay.
I liked the staff at Kosair and so did Ben. He was tired from the trip but he did really good in the office and is such a good boy. There are some differences in his treatment here but we were warned that every doctor does things slightly different. Some of the differences we were happy for and some of them we are not sure what we think but we will be calling our doctor in phoenix to see what they think of these changes as well.
Ben tolerated this treatment well so far but it seems that the timing is that he will start feeling bad tonight or tomorrow morning so we will pray that this won't happen but prepare for it just in case.
We love you all and miss Phoenix already!!

Jamie

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