Today It All Feels Real

We got the results of the Lumbar Puncture & Bone Marrow Asperation Today. It is really good news because Ben only has 2% blast cells which is much less than the 97% of blast cells the day he was admitted. This means that the Chemo Therapy is working great and any fear we had that it would not work and they would have to try other measures is gone. Praise God!! I needed good news today. Isn't it crazy that they can rid him of so many bad cells but we still have to go through this for the next 3yrs+ to be sure they get him down to zero percent.
Ben woke up today a very sweet happy boy and very energetic. We had so much fun today, we did puzzles, painted, read stories, he was joking and laughing. It's like he is a new kid. He will have ups and downs for a while but we will take it in stride.
Matt came to relieve me at the hospital and I gave Ben a shower before I left and that is when we noticed that he is beginning to lose his hair. This is a moment when it felt so real!! It wasn't an amount that would show on his head as bald spots or anything, but we showed the nurses and they said this is how it starts. His nurse said that every kid is different but that it would probably continue in this fashion until he lost most of it. We are going to buzz it down as short as we can so that it is less traumatic for him. We don't want him waking up with lots of hair on his pillow. He was scratching his scalp all day and the nurse said it is itchy for him when it begins to fall out so buzzing it will help with this too.
We did not hear anything about when we will be realeased today. It again really just depends on the insurance getting processed and there really is no telling when they will have it all done.

Ben and I started doing puzzles today....the kids room has a cupboard full of puzzles and a box full of missing pieces so we put together puzzles today then searched the box for their missing pieces....see this is why we need to go home :) too much time on our hands!!

Love you all!!

Jamie